Week three on the diet has brought me to many thoughts and realities about Polycystic Kidney Disease, and my place within it…perhaps. It has been a week of endings at school, continuance at jiujitsu and beginnings of the summer. So many personae and identities to blend: father, teacher, martial artist, musician, writer…
It is Father’s Day and I decided this morning to take a devil may care day on the diet; I do not want to forget that I am trying to stay alive to live and not eek out a meagre existence without experience or joy of a good meal with family that does not include Cronometer at the table. I also know not to let that line smudge so that I descend into a Hell of getting back to ketosis a week later. I never forget that I am fortunate enough to see a long horizon in lieu of death sentence on my PKD. I am in this game of Ren.Nu to make long term changes to keep me going as I am as long as I want. I also know that MOsT of these changes are positive, doable and will have a great affect on the quality of my life. But a great thing soon can become a cult of sacrifice and I know better; I studied vampire cults and identity construction for my Master of Arts at McGill University. Too much is often worse than not enough.
Enough philosophy. How has the diet been going? I think very well. I feel less dead at 4pm, though I have had a few headaches along the way. I enjoy my weekly text check-in with my nutritionist just to see what she sees. It helps and makes it worth the cost of the program. The KetoCitra is good. I actually like it as a drink. Caveat emptor: it is awful as a sports drink. I had some in the car before jiujitsu so I used it and ended up with a massive headache after 8 rounds of 8 minutes of combat. Bad idea, genius. The group sessions help remind me that there are others doing the program who have more and fewer challenges than I do at this stage. I am always interested to see the difference between Canada and the USA when it comes to food and medical experiences. The sessions are a bit of a slog, but they probably need to be.
I have been doing my own meditation program as usual with the Waking Up app. I spent a long time finding the best mindfulness approach for me as a way of letting go of the fear of death, pain and illness that comes along with PKD. I do not think I could have done the MRIs or the sclerotherapy procedures without Sam Harris. My preference, but also a suggestion for others. I expect to always use the app especially now that he has added lectures by others about Self, duality and Buddhism.
Jiujitsu has been rough. I have zero power still. Opponents have 100 percent and adrenaline. Still, this is what I do, and lost 15 lbs in a month have made my body so much more fluid. I am losing one session a week, but I did a 6.6 km run instead of the second session in 40 minutes just to get my body moving at a keto-friendly pace. With a week of day long training sessions in Estonia in a few weeks it is in my interest to find a balance between what I can do and what I need to do, both in terms of carbohydrates and exertion.
Ketosis is slippery. I am just holding on at the bottom end of light nutritional ketosis this week. That is fine for my current goals; I feel pretty solid, am losing weight and have a reasonable mindset, I think. From my experience before, things will get hairy in two weeks as those voice of “reason” start chiming in. People will say: “uhhh, you look too thin.” or “aren’t you too old to be doing this; you need to eat. !” I am fine with that. The beard had to go or I would resemble Rasputin pretty quickly.
What motivates me? My daughter had her first ballerina recital at age five. I want to be here for her as long as I can. I want to be mobile, pain minimal and active for as long as I can until I cannot. She mischievously asked me whether I would die from eating her candy this week; she wanted to know whether it had to be hidden, I think. Life is extraordinary, and I appreciate the struggle, because it gives me the beauty of a summer night motorcycle ride, a blistering blues guitar solo, a perfect Jiujitsu strangle or a profound conversation with a friend. I can avoid a doughnut for that, can’t you?